this post was submitted on 21 Jul 2025
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ADHD

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I open a comm to post, and I forget what fucking comm I'm in and have to double check so I know what to look for - sometimes two or three times. Immensely irritating. This is how I've operated most of my life, but it's especially frustrating now that I know it's not how it has to fucking be. Flowers for Algernon over here.

Fucking American healthcare. "At least we're not Canada, you might have to wait for important care!" The fuck am I doing right now, then?

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[–] 18107@aussie.zone 2 points 5 hours ago* (last edited 5 hours ago) (1 children)

The first few days after stopping meds will be the worst as your body adjusts. Things will get better gradually.

It won't be as good as when you're taking the medication, but things won't stay this bad forever.

Coffee and other similar stimulants can help make the wait a little more bearable.

[–] PugJesus@lemmy.world 4 points 5 hours ago (1 children)

I'm running on three weeks now.

[–] 18107@aussie.zone 3 points 5 hours ago

:(

I feel your pain. I hope you find some relief soon.

[–] AddLemmus@lemmy.ml 7 points 15 hours ago (1 children)

Got to make a stash over time. But I get it; it's not exactly the kind of thing we excel at.

Germany here, and I just learned that for the past month, my kid did actually not do so great at school, after his meds (Medikinet removed) were unavailable and he got a generic one with a completely different extended-release profile. Decided by pharmacist against doctor's orders. Can't believe it! Health insurance is EUR/USD 1100 per month here, and you're not allowed to quit. Least I can expect is that he gets the 40 cents / day meds that help, after waiting a year to get diagnosed and treated!

[–] Lumidaub@feddit.org 1 points 10 hours ago

If you don't mind me asking: How did you manage to be required to pay that much for your health insurance? That seems unreasonable (unless you're pretty well off).

Also, if Medikinet isn't available where you are, what's your pharmacist to do? They didn't just decide on a whim to give your son some other med and they'll have told you the reasons.

[–] Broadfern@lemmy.world 15 points 22 hours ago

I’m sorry, that sucks. I know that feeling all too well.

US healthcare system is atrocious and more often than not these shortages (if that’s what it is) are due to arbitrary quotas by puritanical assholes treating us like addicts.

Sending some gentle vibes your way while you deal with this frustration, and hopefully you can get your meds back soon.

[–] morbidcactus@lemmy.ca 6 points 18 hours ago

I survived pre-diagnosis by heavy amounts of caffeine (which never did much for me) and judicious journalling, externalising thoughts does totally work for some people and at the least you'll have a reference as to what you're doing to come back to. I keep up the habit even on meds, helps on the days I accidentally forget a pill or late calling in a renewal (it's really irritating I have to call every 60 days BTW, no refills for stims apparently)

[–] lath@lemmy.world 8 points 22 hours ago

Has you tried coffee? Or other types of more natural stimulants? And I mean in copious amounts. Some people have said it helps them stay on one thing at a time.

[–] HubertManne@piefed.social 5 points 20 hours ago

the inconsistancy may be the worst part since we have a party who does not like things working. Its like flowers for algernon if you are in the us.

[–] Etterra@discuss.online 2 points 19 hours ago (1 children)

Then how fast did you write your post, OP?

[–] PugJesus@lemmy.world 8 points 19 hours ago (1 children)

Pretty fast. As long as I can keep the thought going, things are mostly okay. When I have to stop to sort through something or search through unrelated material, like my image folders, I lose what I was doing fast.

[–] jb7925@flipboard.social 2 points 17 hours ago

@adhd Hmm.. Don’t you hate when you are working on something, someone calls you over to do something with them then you go about your day. Then the original thing you where doing somebody reminds you and your like OMG! or just leaving stuff that you where doing and hitting your head like Doh!

[–] ericatty@infosec.pub 2 points 21 hours ago

May I ask what happened that you are off your meds? Perhaps we can band together and find a solution.

(Example, on the menopause forums when doctors refuse or withdraw hrt, there can sometimes be help: online resources, or suggestions on what to ask and how to ask it, or suggestions on alternatives when certain dosages or therapies don't work)

There's a lot of overlap with adhd and meno brain (peri and meno also often uncover previously undiagnosed adhd)

Having outside help is invaluable when your own brain is scattered.

[–] Pxtl@lemmy.ca 1 points 22 hours ago

Uh, meds for things like ADHD are the same here in Canada, actually. While our hospitals and doctors are on a different system from you, our meds are generally the same... I mean, from the end-user business of private pharmacies and health insurance and whatnot. There's some kind of collective negotiation with buying that I don't know about that controls the prices.