this post was submitted on 03 Aug 2025
10 points (91.7% liked)

ADHD

11724 readers
97 users here now

A casual community for people with ADHD

Values:

Acceptance, Openness, Understanding, Equality, Reciprocity.

Rules:

Encouraged:

Relevant Lemmy communities:

Autism

ADHD Memes

Bipolar Disorder

Therapy

Mental Health

Neurodivergent Life Hacks

lemmy.world/c/adhd will happily promote other ND communities as long as said communities demonstrate that they share our values.

founded 2 years ago
MODERATORS
 

Hello everyone,

I've been taking Elvanse since June 20th, ever since I received my ADHD diagnosis of inattentive type in April 2025. I'm in my mid-40s. I started with 20mg per day, and since July 8th, my doctor has prescribed 30mg per day.

The first two days of taking Elvanse were almost like an epiphany, because I never would have believed that life could be like this. I can't remember being so balanced. Before, many things around me bothered me: loud noises, conversations, crowds of people, changes in my daily routine. In retrospect, however, I can't say whether it was perhaps just a kind of honeymoon phase.

After the first two days, I felt that the effects of Elvanse were at least less noticeable. This worsened until I was prescribed a higher dose (30 mg) at my appointment with my doctor on July 8th.

Since then, I haven't felt the same way I did after the first two doses of Elvanse.

I've noticed, however, that statements (e.g., from colleagues) that I know trigger me don't affect me as much emotionally or even create a negative focus that's very difficult to break out of.

So far, I've been taking Elvanse continuously since June 20th, but I don't really feel any effect, or I'm not really aware of it.

Before Elvanse, I was constantly tired, and by tired, I mean that I had trouble keeping my eyes open during the day. For a long time, I couldn't explain it. Neither could the doctors, until at some point, at the suggestion of a friend, I got diagnosed with ADxD. Now I explain it to myself as my coping mechanisms, which constantly drained my energy. This fatigue is far from there anymore.

My doctor has now increased my dosage to 40mg of Elvanse per day. I mean, I have my diagnosis in writing, and it was diagnosed in a proper procedure by a trained professional who also studied psychology. It involved several supervised sessions with questionnaires for me and people around me, several interviews, and an evaluation of my school reports. Nevertheless, I often wonder if I really have ADHD. If a person without ADHD took my Elvanse, they would certainly be like they were on cocaine. I, on the other hand, definitely don't notice any overwhelming fatigue anymore.

Do people with ADHD often wonder whether they have ADHD or not? Do you sometimes doubt it too?

Edit:Typos

top 19 comments
sorted by: hot top controversial new old
[–] dizzy@lemmy.ml 6 points 3 days ago* (last edited 3 days ago) (1 children)

I just took my first pill and now I’m Superman

I wrote this a while ago for people who are feeling like you. I’ll copy it below so you don’t have to follow the link but it might be worth checking out the discussions in the comments.

—-

Just a word of warning to everyone just starting their meds. This euphoria you're feeling in your first week or even month isn't going to last. You're high right now because of all the new chemicals that haven't become the norm yet.

This will eventually calm down and that's completely normal, it doesn't mean you need to rush to up your dose or switch meds (I'm not saying don't do these things as recommended by your doc).

Make the most out of this time but don't kick yourself if you're not as productive a month from now when the high is gone and your energy levels get closer to normal.

The more profound effect of the meds will still be there to help you focus and function but feeling the pill kick in like a rocket up your arse won't. The crazy unending motivation to be productive won't either and that's on you to keep up when the high dies down. Use this time to change some of your habits and build a routine that will last.

Another thing to remember as this all normalises in your brain is that you will feel more ADHD than you ever have when you don't take your meds. When you find yourself having forgotten to take your pill or taking a break from it, that isn't how you were before you started your meds, it's all super exaggerated. Brain fog will be 110% cumulonimbus, you'll likely not have the focus to pay attention to a 10 minute youtube video and you may want to eat a planet. Don't start thinking this was how you were before meds and treat the meds like a crutch because that's not what they're there for.

They help with focus and that's all they should do.

If you catch yourself wanting to take more than you should to get that high back then stop and have a long hard think about it before you do because that's a slippery slope to substance abuse.

It honestly winds me up that this sub upvotes all the "I just took my first pill and now I'm superman" posts. That's not how this works and it doesn't last.

Neurotypical people don't leap out of bed every morning thinking they're going to conquer the world in 10 minutes flat. That's just the initial high and we should warn people about it.

[–] twisteddenial@lemmy.world 1 points 3 hours ago

Your description sums up my experience quite well. I have been on Concerta for 5 months now 54mg + 18mg at lunch). In the beginning I felt like I could do "Everything, everywhere, all at once".

Now it has mellowed out a lot and I can even say I feel more affected by my AD(H)D on meds. But I know that is because the medication is helping in some aspects and some aspects alone and doesn't fix everything.

I have a greater ability to focus on the things I actually need to focus on (with some deviation of course), and the best part is that it heightens my mood level. Instead of waking up and being at a -5 I feel like i am more baselined with the medication. A baseline that actually makes me want to do things instead of just feeling that everything is an unclimbable mountain.

[–] eee@lemmy.dbzer0.com 8 points 3 days ago (2 children)

That's what ADHD meds are supposed to do to ADHDers, they bring them closer to neurotypical levels. You're not supposed to have effects similar to cocaine.

[–] caput_t@feddit.org 4 points 3 days ago (2 children)

The cocaine thing wasn't meant literally. I was just exaggerating 😉. I just imagine that people without ADHD might act more like they have ants in their pants when taking Elvanse. But I have to admit, I do miss that feeling a little after I took Elvanse for the first time.

[–] eee@lemmy.dbzer0.com 3 points 3 days ago

My autism striked again, lol.

[–] AddLemmus@lemmy.ml 1 points 3 days ago

I had the same experience. It felt like: This can't be legal!

Still does a bit after almost a year, but to a lesser degree.

Anyway, I suspect that this effect will fade, and that it's more like a side effect anyway, not the intended therapeutic effect. Although these might be hard to completely separate; the line is blurry.

I still have many symptoms, but two major things are completely fixed: Getting on a task just by thinking it, and sharp focus.

[–] spankmonkey@lemmy.world 3 points 3 days ago (1 children)

Lol, cocaine made me calm and focused. Now I take prorscribed stimulants for the same effect!

[–] eee@lemmy.dbzer0.com 3 points 3 days ago

That's what I keep reading about undiagnosed ADHDers and cocaine ;) for me it's that coffee makes me sleepy enough so that I have to go to sleep after drinking coffee.

[–] spankmonkey@lemmy.world 5 points 3 days ago (2 children)

So far, I’ve been taking Elvanse continuously since June 20th, but I don’t really feel any effect, or I’m not really aware of it.

You are handling the triggering comments, and if I'm reading it right you aren't nearly as constantly fatigued anymore. This seemed like a huge change shortly after, but now that you have adjust it doesn't seem any different because you are getting used to the reduced symptoms. An ADHD medication working just means not having all the negative side effects, it won't make you feel super awesome all the time.

[–] NobodyElse@sh.itjust.works 4 points 3 days ago (1 children)

Not feeling super awesome all of the time is one of the reasons why I prefer lisdexamfetamine over dexamfetamine. The slower onset of the former means there is no speedy feeling first thing in the morning and my meds just become “normal pills”.

[–] caput_t@feddit.org 2 points 3 days ago

That's an interesting perspective. I hadn't thought of that, thanks.

[–] caput_t@feddit.org 2 points 3 days ago

Yes, there's probably something to that. Maybe I need more time to better assess and get to know everything. Thanks for the words, anyway.

[–] AddLemmus@lemmy.ml 3 points 3 days ago (2 children)

Much of it sounds the same as me. I'm just 9 months ahead.

The effect of HOW it helps is a bit different for me, though.

I believe that especially initially, it gives a certain euphoria, similar to recreational stims like speed. And many patients feel like that is how it helps only, and that it stops working after a while. But what it is supposed to do, to regulate noradrenaline and dopamine in the prefrontal cortex, keeps working even after years - or so I've been told.

I think more focus should be put on how falling asleep was a primary symptom before. I can think of a couple of reasons: Comorbidity with something like narcolepsy, not enough sleep, or actual ADD symptom from sensory overload leading to tiredness or something. It will be hard to figure out whether Elvanse helps by keeping you awake, or if there is more to it. If it's the former, I believe it'll slowly fade over the next 6 months like high dose caffeine.

I did have the same problem before, but I realised I need naps. I have to work from home, because without my noon nap, things are bad. Often, I don't even realise I need a nap; I just get cranky like a baby. My thoughts end up in a bad place, everything sucks and is wrong. It's really a must for me. And I actually used to fall asleep at meetings or at my desk, no matter how bad it looked.

And I noticed that especially on Elvanse, I can't trust myself. I lie down and close my eyes when I SHOULD feel tired based on what I did, not when I actually feel tired. Stims make it much harder to feel tiredness, exhaustion or hunger, but it's super important to act as if I would feel it. This advice (from my doc) that was the biggest extra boost I got after getting the meds.

Oddly enough, I did use Modafinil, which is used against narcolepsy but also happens to work against ADHD, before I could get my hands on the good stuff.

So long story short, not sure if your situation is exactly the same, or very different. Chances are, I didn't quite figure out mine yet either.

[–] caput_t@feddit.org 2 points 3 days ago

I think more focus should be put on how falling >asleep was a primary symptom before.

The more I think about it, you might be right.

[–] doo@sh.itjust.works 1 points 3 days ago (1 children)

I think that having difficulty noticing tiredness, exhaustion or hunger is a major symptom of ADHD. Do discuss this with your doctor, your dose might be not yet right.

[–] AddLemmus@lemmy.ml 2 points 3 days ago

Already done, and it was found to be a side effect of the medication. Not a problem unmedicated.

[–] HeyJoe@lemmy.world 2 points 3 days ago (1 children)

I was diagnosed with ADHD back in high school over 25 years ago. My parents didn't do much about it, so they would take the advice of school staff on what to do and try. They didn't really believe thats what I had and had me try medication once, and based on what I said it did they eventually stopped because it didn't appear to work. Over my 30s, some of my friends are on this to help them out. They have given me some because it works great at keeping you up at night and when we would go out and knew it would be a long night we would take a little. I felt incredible on it, and everything just felt clearer to me. They told me thats what its like, but I still feel like it hit me more, and I started thinking maybe I really am ADHD and just never dealt with it. I can concentrate, im more organized, im legit a better person, and want to get things done. Not being tired is also a great effect.

What scares me is the fatigue you talk about, which seems to hit me a lot over the last few years. I will be asking my primary doctor about how they feel about me trying this out because I really hate how tired I am by around 4-5pm most days. I know it can be a lot of things, but it's something to look at.

[–] caput_t@feddit.org 2 points 3 days ago (1 children)

I definitely didn't mean to scare you or make you feel insecure. I'm sorry about that. But for me, without medication, it was the same: I was really tired all the time and could basically fall asleep anytime and anywhere. I would even get bouts of tiredness while driving, and I would ask my wife to keep going under the pretext of needing a break. I was also a little ashamed of being constantly tired, even in the most inappropriate situations. In those moments, I was more concerned with the thought of falling asleep at the handlebars while driving and thus endangering not only myself but everyone else on the road. Of course, I don't know how severe your pressure to sleep is in your situations. For me, it was and probably still is enormous without medication.

[–] HeyJoe@lemmy.world 1 points 3 days ago

Nah, definitely not scared. I am intrigued more than anything to get the ball rolling on myself. I have said in the past that I would talk to my doctor more about it but never had the courage to bring it up. I just don't want to feel like someone asking for drugs... besides that im in my 40s now, and I've only been to my primary twice in 5 years, and before this, the last time I saw a doctor was my pediatrician, so not much history.

I definitely feel the same with being exhausted, but only like after work. Driving has never been questionable. I also have 2 small kids, so that may not help me either, lol. I'll just have to figure it out. I know that when I tried it, it was incredible for energy, but I also wasn't sure if it was a good thing either or if I was pushing my body more than I should. I've only had it like 5 times over 4 years, so I'm definitely only once in a blue moon. I am not sure how I feel about using it daily, but I'll discuss it with my doctor next time.