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Wait. Is chronic Lyme not actually a thing? There are quite a few long/chronic types of things I'm aware of that are quite real, but also still not super well understood. I assumed Lyme was in there with those. Real, but more of a side-side-effect of a disease that breaks something in weird ways for different people.
Chronic lyme is pseudoscience, its the belief that "lyme" isnt curable. but people dont attribute the neurological damage from lyme as a sequelae or the fact that there a bunch of other diseases that cause symptoms similar to lyme. so they seek out LLMD to give them confirmation biases(LLMD are unethical asf, but thier MD license arnt in danger.) by the way, chronic lyme was coined by a mom, like with other fake diseases, and they also lean into anti-vax a bit. almost any posts about lyme on any forum/video, always have someone chiming in to look into the Chronic lyme. there was an episode of monsters inside me, about lyme i think the official channel deleted the video as it was drawing unnecessary attention,
the problem is these people also seeing UNETHICL MDs who prescribe them questionable blood tests and antibiotics, which as you know if you take abx too long it can cause THRUSH infections, and neurological problems, like peripheral neuropathy. since these docs usually dont take Insurance, because eitherthey know insurance will try to investigate fraud, or whatever, they CHARGE BY THE HOUR, USUALLY hundreds.
lyme, if you leave untreated long enough it causes syndromes similar to RA, and other neurolgoical diseases, which can be long term or permanent. what the CL people believes is this is a permanent infection. also as a note they dont believe in Infectious diseases specialists too,.
Wow thanks for that follow up info. I had no idea. I also looked it up some and read a few things in it. Hard to know what is accurate or true, but yeah. It makes a lot of sense that it is the untreated infection leading to neurological damage and it's that neuro damage that is mistaken for an ongoing infection. I can see how people would believe that.
Sad that it's being taken advantage of too, ugh.
I remember being TERRIFIED of getting Lyme as a kid because there was this kinda perception/belief in permanent illness or severe damage and all that. Not that Lyme isn't dangerous or deadly, but good to know it's not some spooky forever mystery disease.
remember the scientist who discovered lyme, was stalked, harrassed and had death threats against him, he had to get private security. he was also saying theres no such thing as CHRONIC lyme. its basically a cult with an industry behind it. like someone said it likely it some other disorder, like CF or a mental component. if you dont live in lyme "country", or unless you were near there but dint see a tick or anything, ubt a telltales bullseye rash.
It's just chronic fatigue syndrome.