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I have a chiari malformation, which is essentially my brain falling down the back of my neck. During the period if time where we were still figuring out what was going on I was asked to get a CT mylegram. Now no one explained to me what this was, but i thought it was a CT scan. So i show up to the hospital, having driven myself, and sort of kick around until my appointment.
Then the doctor has me lay on a table face down. There is a man there, big muscles, standing next to the table. The table has a hole in the head pillow. The doctor says hell be right back hes just grabbing the needle. I say wait what needle?
Hes like oh its the needle for the contrast dye for the CT scan. I'm like oh ok and settle down. The doctor comes back and asks me to lift the bottom of my shirt so he can access my back. I stop again and go what are you talking about.
He let's me know at this point, for some fucking reason, that the dye is going inside the spinal column. This is a god damn spinal tap and i learn 2 seconds into it about to happen.
I'm nervous but i lay back down and the big guy puts all his weight on my shoulders to hold me still and they start the procedure. The actual needle doesn't hurt that much, no more than any other needle. But then they inject the dye.
There is this...hot pressure feeling. My chest starts feeling tight, like an elephant is stepping on it. The muscular guy has to really push to hold me down because involuntarily I jerk. My head is swimming, I feel hot, and i feel like my chest is being crushed to dust.
They transfer me to a movable table and quickly wheel me to the CT room. I don't remember much of this because i was hyperventilating and cursing. I didn't have much control over what i was doing and I'm shocked I was able to stay still enough for the CT scans.
When the burning and crushing sensation started to pass I was laying on a bed with the muscular guy who was watching over me. He asked if i was ok and then asked if i wanted a sandwich from the cafeteria? He ordered me one, never got charged for it. We talked about videogames for a couple hours, and then they released me to drive home. I almost passed out on the way home and ended up later developing a CSF leak.
Worst experience of my life 0/10 do not recommend.
Wow that's absolutely insane that they didn't explain that to you! And a CSF leak?! Yikes.
Hilariously I was having trouble getting it scheduled because the doctor wanted images of my entire spine, and the scheduling lady couldn't find a way to book me for 3 scans back to back. And i, thinking this was a normal ass CT scan said "its ok, if i need to do it 3 times, then I have to do it 3 times. I just need this scheduled asap because currently I'm bedridden".
She went quiet then came back after some time and said "I have an appointment set up for you for all 3 back to back this week"
I now wonder if she was like Jesus Christ this guy is willing to do 3 spinal taps? He must be on deaths door 😂
Omg 😂😂