this post was submitted on 07 May 2026
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Me, I have a disease which is kinda wiping out my connective tissue over time, which includes those lovely soft discs in my spine, dammit. Biggest current issue with that is that it's getting harder and harder to sit at my desk for more than ~15min without lower back pain ratcheting up...

So I was wondering if anyone here with lower back issues has found a chair that helped them sit?

From L-R, T-B, chair #2 is a saddle chair, which looks kinda interesting. Chair #4 is one I used to have, which seemingly tries to keep the spine perfectly straight-up, but it was also hell on my knees.


Now, chair #3 kinda looks like a Star Trek-style bumper-car that I'd want to ride in my very last visit to an amusement park. ๐Ÿ˜„


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[โ€“] JohnnyEnzyme@piefed.social 3 points 5 days ago (1 children)

I do like walking all around!

Unfortunately, people with CFS/ME commonly suffer a severe-payback upon walking 'too much,' so it's like I must carefully walk 'just the right amount each day, and nothing more.' (we commonly get "post-exertional malaise" or P.E.M.)

It's so weird... I can walk around happily, with the best intentions, but then lay myself up for many days in bed afterwards, with some of my worst depression ever... just by walking around too dang much. &^@#$

[โ€“] pipe@lemmy.world 2 points 5 days ago (1 children)

Right there with you on the chronic fatigue syndrome. I had a big collapse about two years ago and have been rebuilding slowly since then.

Maybe it will be helpful to you if I share my experiences?

I find it's absolutely key to avoid outdoor walking for exercise, and do it instead on a treadmill with a timer and digital speed control. That way I can precisely track and control how long, how intensely, and in what environmental conditions I exercise. Little things like temperature, wind, air quality, social interactions positive and negative, waiting times at intersections, route changes due to obstructions, and sound levels add up fast as variables that change true time spent and overall energy expenditure.

And it gives me a true barometer of how I'm doing -- I can sometimes detect incoming flareups before they start just by realizing I'm reaching my "stop now" level sooner than usual. I stop right away (never push past that feeling).

Then I can adjust my schedule (including skipping the next exercise day) and my commitments, to head it off before it gets worse, to plan for extra rest, and to just not feel so blindsided, guilty, and useless.

Going outside for fun is different -- should still do that -- I've just found that it's too uncontrolled for the critical survival exercise I need to conduct.

This has made a major difference in my quality of life!

[โ€“] JohnnyEnzyme@piefed.social 1 points 5 days ago (1 children)

Thanks for sharing!
I have a bike trainer at home, and do something roughly along the lines you state, but less in terms of notes and quantifiables, and more in terms of interoception, which seems to work pretty well. Oddly, higher-exertion activities, such as riding that way, or dancing on my wooden floors, seem to be much better for me than walking, maybe because I get more of a heart workout that way.

I had a big collapse about two years ago and have been rebuilding slowly since then.

Damn, that sucks. Mine has pretty much been a constant all my life, in which it distinctly doesn't pay to get older.

Btw, in terms of CFS/ME, this chart kind of gives an idea of possible causes and research paths:
https://ars.els-cdn.com/content/image/1-s2.0-S1568997226000571-gr1.jpg

From this study:
https://www.sciencedirect.com/science/article/pii/S1568997226000571

[โ€“] pipe@lemmy.world 2 points 3 days ago

Thank you for the links and for sharing, also! I've always had it too, but have had a few critical episodes in my life where it suddenly became a bigger factor. Once in my early teens, once in my mid twenties, and then now in my forties. But life is again improving so no complaints here ๐Ÿ˜†

My best to you, and I hope you have smooth sailing ahead!