Ask Lemmy

I just assumed doctors know all about diabetes stuff…

They do! They know how the hormones work, but not how the food relates to the hormones - they really don't get training on this.

I felt greasy and horrible and disgusting and heavy

This sounds like a gallbladder wake up issue - after a long time on low fat the gallbladder has some starting pains.

my LDL cholesterol went even worse (6.3–7.8).

LDL, and cholesterol is not a disease - if your doing proper LCHF and in ketosis - very lean people do see a elevation in LDL, but since you indicated some adiposity this probably wasn't your scenario.

I tried fixing it by eating mostly protein and low fat instead, but considering I can’t eat much volume per day, that just ended up with me eating almost nothing and things went real bad from there. I couldn’t get out of bed for days at a time levels of fatigue. So I slowly added back in wholemeal carbs and some fat, and at least now I know what types of carbs cause spikes.

Low fat isn't sustainable on keto, if you join one of the medically supervised nutrition programs they won't let you stay low fat for the reasons you describe. The probably will have you slowly increase fat so your gallbaladder can keep up, or add some bile supplements while you adjust.

The reason I can’t eat much is I have erosion in my esophagus, stomach, and intestines from GERD acid reflux (confirmed via endoscopy). I’ve been on strong acid suppressants for a while but it seems like the “damage is done” so to speak from decades of acid splashing all over the place, and it’s not healing. At least I don’t wake up with a melting throat anymore so I’ll take that.

Suppressing stomach acidity does match up with your fat intake symptoms. The literature does indicate that keto (but especially zero carb) helps with GERD, but this must be done under medical supervision as medications will need to be adjusted during the onboard phase. I'd recommend either revero (zero carb) or virta health (keto) as programs to work with their physicians in a Telehealth setting.

I’m on statins recently to try and reduce my LDL.

Statins increase the risk of t2d, so that lines up with the prediabetes.

this is only a small part of my medical problems. Before we get into POTS, CFS, hEDS, MCAS, chronic migraines, arthritis, hormone problems, heart problems, neuropathy… I always forget most of my issues as well I can’t keep track of them all. I take more than 10 pills per day to manage all that.

I'm not familiar with all of those - but migraines, arthritis, hormonal issues, heart, and neuropathy all have strong foundations in the underlying diet and hyperinsulinemia.

I just accepted I’m going to die sometime soon based on this trajectory.

I don't think thats necessary. Work with a low carb doctor to improve your metabolic health. There are LOTS of people with testimonials about how their life turned around by focusing on small metabolic changes. I'm happy to share those if you would find them motivating. Where ever you are - you can improve - just focus on one step at a time.

I’ve been trying to increase my walking per day because I heard walking is a great way to reduce diabetes and heart attack risk. I’m up to 15 minutes walk per day and some sneaky resistance training, which knocks me out for the rest of the day, but it makes me feel like I’m doing something at least.

That is great! every bit of movement helps.

Basically my body is failing in a million different ways at once at this point. If I only had one problem it would be easy to fix, but everything interacts and compounds the issue.

My suspicion is that everything is rooted in metabolic problems just manifest in a hundred different ways.

Basically my body is failing in a million different ways at once at this point. If I only had one problem it would be easy to fix, but everything interacts and compounds the issue. Thanks for listening and trying to help by the way, you’re a kind person

Yeah! I'm happy to help if I can. I really think you should reach out to virta, this is exactly their focus. Please reach out to either revero (zero carb) or virta health (keto) to see if they can help with your health management.